| Important Notices |
Events, Opportunities & News for You
> 2nd Annual Cadette/Cadete Family Golf Tournament - September 20, 2010!
CALLING ALL GOLFERS, VOLUNTEERS, SPONSORS AND FRIENDS!!!! Tee off with sbaMass on September 20, 2010 at the beautiful Cyprian Keyes golf course in Boylston, MA! Shotgun Start at 11:30 am. Join us for a beautiful day of golfing and early evening of fun for a great cause. Registration and Sponsorship Information is available at www.golfsbamass.org.
> Northeast NY Conference, Oct. 2, 2010, Albany, NY
Join your colleagues and friends to hear Keynote Speaker Ms. Ronna Linroth as she presents "Prepration for Adult Participation: A Logic Model for Transition". Download the flyer for more information.
> Support a sbaMass Runner in the 38th Annual Falmouth Road Race! - Aug. 15, 2010
On August 15th Team sbaMass will again be participating in the Falmouth Road Race. Once again, our wonderful runners will dedicate themselves to raising funds and creating public awareness for sbaMass. Through the efforts of the 25 member team, we expect to raise over $30,000 for the sbaMass community. By running and fundraising for sbaMass our Team contributes in large part to keeping our important programs running.
Contact Wendy Potts at wpotts@sbaMass.org or Ellen Heffernan-Dugan edugan@sbamass.org 888-479-1900. To support Team sbaMass log onto http://falmouthroadrace2010.kintera.org/. Thank you!
> Spina Bifida Association has recently announced 2010 Award Recipients!
The Spina Bifida Association has recently announced 2010 Award Recipients. Awards were presented during the 37th Annual SBA Conference. Learn who they are by clicking here!
> Erin Murphy’s Challenges and Victories
Check out the video about Erin Murphy and her challenges and victories on the BU campus. Visit BU Today Campus Life created by Ned Brown (nedbrown@gmail.com), a videographer/multimedia producer at the Harvard School of Public Health.
> Health Reform
On Tuesday, March 23, President Obama signed into law a set of historic health reforms. The Spina Bifida Association (SBA) remains steadfast in our dedication to the principles of healthcare reform for people with Spina Bifida. For more information, down this article (PDF).
> SBA Creates Informational Online Video Series
Recently, SBA worked with an online video production company to create two informational video series related to Spina Bifida. The first of these video series, entitled Understanding Spina Bifida, features SBF President Scott T. Price, Esq. and outlines the basics of Spina Bifida, its treatment and care options, and research being conducted.
The second video series, Living with Spina Bifida, features SBA Board Member Donna Jones and highlights her experiences living as an adult with Spina Bifida.
> Passing of a Friend
sbaMass mourns the loss of a friend and advocate. On Friday September 4, 2009 Mary Jo Dunleavy, passed away after an illness of several months. During her career of more than 30 years at the Children's Hospital in Boston, she worked at the urology and general surgery departments and most recently served as nurse coordinator of the hospital's Spina Bifida clinic. The thoughts of the Spina Bifida community of Massachusetts are with the Dunleavy families during these next difficult times. Mary Jo was a dedicated nurse and friend of sbaMass. She will be greatly missed by all her knew her.
sbaMass has placed a condolence book at the Myelo Clinic at Children’s Hospital. During your upcoming appointments, please sign and leave a message for Mary Jo’s family. In addition if you would like to send a card to Mary Jo’s family, please forward to sbaMass, 321 Fortune Blvd, Suite 5, Milford, MA 01757. The sbaMass will forward all expressions of sympathy on to her family.
A click of your mouse will support sbaMass in building the Mary Jo Dunleavy Memorial Wall and Scholarship Fund. Please make a tax deductible donation by visiting the Mary Jo Dunleavy Memorial.
> MATCHING GIFTS - Make your contributions go further!
The sbaMass has a list of companies in Massachusetts that provide Matching Gifts for their employees. Download a list here. Check with the personnel department at your place of employment to see how the program works for your company. Review the requirements carefully as each program has its own requiremnts. Thank you for supporting sbaMass, its programs and services.
> Donate to sbaMass in Honor of a Special Occasion
Wedding, baby shower, bridal shower, birthday, bar/bat mitzvah, christening or baby-naming ceremony, anniversary, confirmation, graduation, holiday party, retirement or a employee recognition event.
Your guests will appreciate your gift to sbaMass and be touched by your generosity! Mark the moment with beautifully designed table cards. View a sample here (Word format)
For more information, download the information sheet (Word format) or contact Ellen Heffernan-Dugan, Executive Director by calling (888) 479-1900 or by e-mail at edugan@sbamass.org
> sbaMass Annual Benefits Program in Full Swing!
The sbaMass has updated its Annual Benefits Program. For more information and to find out how you tap into this financial resource, visit our Benefits page now!
> The Department of Conservation and Recreation Universal Access Program
The Division of State Parks and Recreation's Universal Access Program is dedicated to providing outdoor recreation opportunities in Massachusetts State Parks for visitors of all abilities. For more information, visit the DCR website!.
Announcements
- Penn State University needs Volunteers for a Research Study on relations between eating habits, obesity, and bowel habits among children with spina bifida
- Do Something Invites Young People to Apply for Community Project Grants
- Marci Trodella runs for her sister and MSBA!!
- Health Guide for Adults Living with Spina Bifida
- Action Alert - Our Advocacy Efforts Have Paid Off!
- Grants Available for Individuals with Physical Challenges in Essex and Middlesex Counties, Massachusetts
- Applications Are Now Being Accepted to Join the MSBA Youth and Adults Group Planning Committee
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